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Personal Stories Posted by Sylvia on Tuesday, December 02, 2003 (02:21:06)

by Anne

It is hard enough having one handicapped child in the family let alone three. When I first learned of my sons autism through my own realization I sought out a diagnosis from a noted psychiatrist in my area. The school district I was in at the time required a diagnosis if Brodie was going to get the help he needed.

It was very difficult for me. I went through the battery of enzyme tests and blood tests(well Brodie did) We had him tested for fragile x also. This is the first thing they test for by the way. Finnally we got him into the school he needed to be in and he excelled there.

My daughter Jessica always had a learning disability but we weren't sure what it was. She had quite a few surgeries when she was little due to cardiac problems at birth.

Looking back on baby pictures, Jessica looked like a down syndrome baby. I didn't see it then. Jessica has had behavior problems that have really thrown us for a loop. She started running away 1 year ago and the last time they had the dogs out looking for her. They would have found her if she hadn't gotten into someone's car. Jess is very high functioning and is very good at manipulating people.

It was very cold that night and I was very worried. I stayed home that night and waited while my husband and the police were out looking for her. My parents and sister joined the search also. I was so angry because I told them where to look, a mother knows. They would not listen to me. Instead they concentrated their search around the school where she fled from.

The police did not find her that night. A woman at a McDonalds overheard Jessica telling some kids she ran away, so she looked in her bookbag for information on her and found our phone number. I never met this woman to thank her, Jess was surrounded by police by the time I got there having alerted them when I got the phone call.

Of course police are not trained to know what autism is and were hanging on her every word. It was 10:30 at night and Jessica had been missing since 2:45. I can't tell you the agony I went through. At first I was angry with her, then as time went on I became very worried.

*We have deadbolt locks on our doors that can only be opened with a key AND an alarm now. If you have a child that wanders, please install at least the deadbolts.*

There is a funny story about Brodie. He used to get up in the am very early and of course he was naked. He would take it upon himself to go out for an early morning walk. I laugh about it now but it wasn't funny then. Autistic children can be very good escape artists if you don't keep on top of them.

One morning at 6 am I was awakened by my daughter screaming "Brodie is outside and he's naked" There he was, walking down the street naked carrying a can of orange pop. At least the neighbors were not up yet.

Brandon was a different story. I thought he was my normal child when I had him. I thought finally I have one normal child, I only wanted one. Well when he was 15 months old he was diagnosed with pervasive developmental disorder. What a blow that was. I kept asking what was wrong with me?

After my kids were diagnosed I found out that my ex-husbands family has several people with autism. My ex-husbands sister for one and now I think that my ex-husband has some form of it.

Just because you have autistic children does not mean you or your husband have the disorder in any form. Autism is basically a bunch of symptoms with many different causes. I believe the majority of my childrens problems come from a genetic link from my ex-husbands side of the family.

Some people have reactions to vaccines. The vaccines MAY have been a factor where Brodie is concerned. After he received his MMR he had very high fevers of 106 degrees. It was alarming but since he was playing throughout the fever his doctor wasn't worried.

I think he may have been injured by the vaccines but I will never know for sure. He is improving now, and next time he needs an MMR he will be watched closely. The important thing is that you do everything possible for your children. I love mine very much and even though three of them have autism I wouldn't have them any other way.

My daughter Kimi is 3 years old now and she is doing very well. I don't see a hint of any learning disability. She is so smart and will often "supervise" the boys. She has three dogs also that constantly watch over her. It is funny at times I think she thinks she is a dog. We have an Esquimaux dog who acts like her mama.

Having children with autism is very difficult, especially if you are a single mother. Forget having a having a life of any kind. My children have scared away a few good men but hey, they probably weren't that good to begin with.

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x x Posted by Sylvia on Tuesday, December 02, 2003 (02:21:06) (2123 reads) x x

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