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x News : Autistic adults' needs 'not met,' says Wales charity x
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News Posted by Sylvia on Saturday, February 05, 2011 (04:57:43)

BBC


More than half of adults with autism in Wales say their needs are not being met, according to a charity. The National Autistic Society Cymru said despite improvements, many people with the condition still had difficulty finding and securing services.

One in 10 adults said they had waited 10 years to be diagnosed, while 12% said they had been homeless. The findings are published in a report called The Life We Choose: Shaping Autism Services in Wales.

The report highlights that while progress has been made across Wales in diagnosis and support, many people still feel that there is a lack of available services and professional understanding.

One mother said that earlier diagnosis of her daughter's condition might have saved her marriage.

The NAS Cymru report found that 54% of the 354 people in Wales interviewed thought that their needs were not being met, while 58% the diagnostic process took too long.

Almost a third of adults with autism said they did not know where to find the support they needed, while 26% of parents and carers said they had been given a carer's assessment, but only 52% of these receiving support as a result.

Some 59% of parents and carers said that a lack of timely support had resulted in higher support needs in the longer term.

Increased awareness of autism in schools can help children and young people reach their potential and also help prevent issues like bullying, according to NAS Cymru.

Jo Salmon, whose daughter, Holly, 12, has high-function autism, said the diagnosis was a "long process".

'New strategies'

"When she was a baby there was something not quite right but it took five years," said Ms Salmon, of Caerphilly. "It was a fight to get a diagnosis.

"There have been a lot of changes - it turns the role of parent on its head. I had to learn new strategies on how to deal with Holly.

"I was upset and angry that it took five years to get a diagnosis.

"If we'd had a quicker diagnosis Holly would have had coping strategies sooner and I'd have dealt with her in a completely different way.

"Our lives would have been much easier and maybe - maybe - my husband and I would still be together.

"Things are difficult. Things fall on me, while my son is classed as a young carer because he helps Holly a lot with different things. It has been difficult, and it continues to be difficult."

'No consistency'

Jill Grange, who lives in Bridgend with her 12-year-old son Matthew, said her family had a mixed experience of education and support.

"For years, I was unable to get appropriate support for my son in school," she said.

"It would be a different person helping him all the time so there was no consistency, and they seemed to have little or no training in autism.

"It got to a point where I had to home educate. He is now in a mainstream school, which understands his condition, but it's followed years of struggling."

Rebecca Evans, of NAS Cymru, said: "Our report is based on the largest-ever study of the experiences of those affected by autism across Wales and, crucially, reveals just how many are still not getting the basic help they need.

"While we are pleased to highlight several examples of promising work, such as the development of an all-Wales approach to adult diagnosis, and the production of awareness-raising resources for newly qualified teachers, what we need now is to ensure that people really feel the benefit and receive the support they are telling us they need."


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x News : Professor welcomes 'song for autism' x
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News Posted by sylvia on Monday, July 16, 2007 (12:23:35)

24dash.com

Professor Simon Baron Cohen of the Autism Research Centre in Cambridge University has welcomed the news that the song for autism is to be released in London.

The cover of 'Open Every Door', was sung by Rosagy, a musician who has Asperger's Syndrome.

Professor Simon Baron Cohen said: "I am delighted that Rosa's beautiful version of the song "Open Every Door" will be used to fundraise for autism research.

"It is the energy and idealism of people like Rosa that inspires people to do whatever they can to make the world a better place for people with autism," he said.

Ivan Corea who heads the Autism Awareness Campaign UK said: "I am delighted that Rosa is covering the Nimal Mendis song for autism 'Open Every Door'. I know it will go a long way in raising awareness about autism and I would urge music lovers all over the world to support the song."

'Open Every Door' was written by Asian superstar, the Sri Lanka-born singer/songwriter Nimal Mendis who lives in the UK.

Mendis dedicated the song to a 11 year old boy with autism, Charin Corea who is the son of autism campaigners Ivan and Charika Corea.

Charin was the inspiration behind his parents campaign - they set up the Autism Awareness Campaign UK in 2000 and have been lobbying for better public services for all people with autism and Asperger's Syndrome.

Ivan Corea recently met with Gordon Brown on the campaign trail and asked him a question on autism. Mr. Brown conceded that the Government needs to do more for all children with disabilities.

The Autism Awareness Campaign UK has urged Prime Minister Gordon Brown to provide all children with autism and Asperger's Syndrome with a 'world class education' and specialist education facilities.

Rosagy who is a mother with a child, who has also been diagnosed with Asperger's Syndrome, hopes to raise funds for Professor Simon Baron Cohen's Autism Research Centre through the song 'Open Every Door.'


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x News : Autism Campaigners appeal to Gordon Brown x
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News Posted by sylvia on Monday, July 02, 2007 (18:46:38)

UK Autism Campaigners are appealing to the new Prime Minister, Gordon Brown, to invest in the lives of autistic children in the UK.

Autism is a neuro-developmental disorder -over 500,000 people in the UK are on the autism spectrum. According to researchers 1 in 100 children may have autism. Over 90,000 children in the UK are autistic - many suffer without proper access to public services in education, health, specialist speech therapy and respite care.

Ivan Corea of the Autism Awareness Campaign UK recently met Gordon Brown on the campaign trail and asked him a question on disabilities and autism. Mr. Brown conceded that the Government needs to do more for all children with disabilities.

Mr. Corea said: 'I appeal to Gordon Brown to provide a world class education for all children with autism and Asperger's Syndrome, to provide new specialist autism schools, even Special Needs Academies and autism units equipped with sensory rooms in mainsteam primary and secondary schools; to provide young people with access to further education and higher education, to provide labour market opportunities for people with autism who are able to work.'

'Equality of opportunity must include every single autistic child and adult in our country. They have a role to play in society - they can also contribute to the economy of our country, children and adults with autism and Asperger's Syndrome have so much potential,' he said.

The Autism Awareness Campaign UK is looking to Prime Minister Gordon Brown to launch a national strategy on autism and a 10 year plan of action to help parents, carers and people with autism and Asperger's Syndrome.

The call for a national strategy on autism backed by UK charities, community organisations and people from faith communities.


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x News : What we need to know about autism x
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News Posted by Sylvia on Wednesday, August 02, 2006 (18:18:13)

Deccan Herald

By L. Subramani

A mother would find it strange if a child remains unresponsive to her affectionate cuddles. Its inability to participate in human interactions, preference to be alone or unusual muteness (especially when it should be showing signs of picking up language skills) would even disappoint her.

But all she needs to know is that a child with these symptoms could have autism and requires more of her help and support. A neuro-developmental condition, autism can be diagnosed from the age of three (nowadays even much earlier) and its impact differs with each individual child.

“A classic autistic condition would be a significant lack of development in language and social behaviour,” explains Dr Shekhar Seshadri, a professor with NIMHANS. “Inability to be responsive; having a limited repertoire of activities (tending to be more repetitive) are largely indicative of a child’s autistic condition.”

Dr Seshadri also reveals that children with autism have problems in using pronouns (always referring to themselves in the third person) and can’t understand the other person’s perspective, called ‘Theory of the mind’. “They can’t interpret the other person’s knowledge, feelings or intentions from cues like facial expressions and gestures,” Dr Seshadri says.

Autism can be a result of several factors; chromosomal, genetic or damage to the part of the brain where information is processed. Dr Seshadri says the condition could overlap with mental retardation or with other co-morbid conditions like epilepsy.

“There can even be a possible manifestation of autistic spectrum - a combination of different autistic traits - which may determine how far a person is affected by the condition,” he explains.

Though it is hard to attempt a cure with the technology currently available, Dr Seshadri insists that treatment is important as doctors need to determine the overlapping conditions and ways of containing the person, especially if he/she shows violent behaviour (self-injurious behaviour like banging the head in most cases).


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x News : Autism Awareness Campaign UK call for a review of public services x
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News Posted by Anonymous on Monday, July 24, 2006 (12:39:16)

The Autism Awareness Campaign UK are calling for a review on Autism and Public Services in the wake of the Humberside Tragedy.

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