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x Personal Stories : We must do more to help parents cope with autism x
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Personal Stories Posted by sylvia on Wednesday, October 29, 2003 (14:32:44)

TERRY WYLDE News.Scotsman.com

No sleeping! No sleeping! Every time I started to drift off, the hand would snatch out and peel my eyelids back.

And the questioning. The interminable questioning. And the screaming. The interminable screaming.

I was never allowed to sleep for more than a few hours a day. No phone calls were allowed. Just the daily grind of questions and screaming and unpredictable behaviours in a never-changing regime. This was my daily existence for 13 years.

My daughter has Asperger Syndrome, a form of autism. To have a handicapped child is devastating, but to have an autistic child perhaps doubly so. There are very few physical signs anything may be wrong, it is often only strange behaviours and obsessions which can alert to the condition.

You have to get used to people thinking you are a bad parent who cannot control your child, doctors calling you over-anxious, even family members dismissing your child as a spoilt brat. Friends shun you, as they cannot cope with the child’s behaviour.

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